

The next day anesthesia came in at 6 am and I signed her consent for surgery. I was waiting for neurosurg to come in and discuss the CT and get consents signed for that but the hours kept passing by without a rep from the team. Around 10:30-11 am Dr A came to visit us and had just been by to see Jadyn and said she looks wonderful. He showed us her CT scan and couldn't really explain how the vents decreased dramatically and how she had a head full of brain tissue but she wouldn't need surgery (just yet), she could leave the NICU because she didn't need to be there and she could go home with us on Friday, New Years Day. I was close to tears when I heard that but didn't cry. I was probably still too exhausted to cry, hehe. She only has moderate ventriculomegaly right now. We aren't in the clear but we are certainly better off than we EVER imagined we'd be. Maybe something helped going through the birth canal?? Beats me.
We finally got baby in our room around 1:30 in the afternoon and we were super excited just to be with her. I know I was supposed to take advantage of the nursery but after not being able to be with her the first night, I wasn't putting her there the 2nd night. New Years Eve had started out as one of the best days of my life until I got the call that my Harley baby had been attacked and was being rushed to the Pet ER, once again. Those who know his story two years ago understand why I said: once again. He was shaken by a dog back in 2007 in my front yard which was his first attack. His second was more serious. The dog got him around his neck and bit him hard causing major damage to his neck/airway/esophagus. He is currently trached =( This dog was out for blood and it was really an attack this time. The animal hospital was able to stabilize him and the first 12 hours are the most important. He made it through with flying colors as he always does. He is certainly my little trooper. He has been hanging in there this weekend while the surgical team was out but after evaluation today by the surgeon, he needs many repairs. I have been busy with baby so I was
avoiding the hospital but I went up to see him Sunday night and he is so pitiful looking but doing okay. He licked my nighttime lip balm-Burts Bees off my lips, twice. He did that every night I put it on. He still sits on your foot and throws himself back so you will scratch his belly and the insides of his thighs. He was doing all his normal Harley tricks. After conversation with the team this morning and hearing how extensive the damages are and what 1:1 care he would need, we decided not to put him through anymore suffering. He would maybe need a permanent trach and very likely a GT that could or could not be permanent depending on the damage they find when they open him up. For those who know me, they know I'd do anything for him no matter the cost and trachs and GTs are my speciality but I just can't take care of him and a newborn at the same time. He was put to sleep on Monday night in Jay's arms with the support of Jay's mom and my Dad. Jay had to be my representative as I just couldn't bring myself to be there. He was my first dog after 24 years of putting a dog on my Christmas list and he has been the best little guy for the past 5.5 years, even though a lot of the time I'd tell you otherwise. I know he was well taken care of, better than most dogs and even some human beings =). I know he knows it too. The house is very quiet without him even with a new baby and Jake still. Harley surely must have been the one who brought the excitement and or yelling, hehe =). He'll always be my "first born" even if he was only a pup.
avoiding the hospital but I went up to see him Sunday night and he is so pitiful looking but doing okay. He licked my nighttime lip balm-Burts Bees off my lips, twice. He did that every night I put it on. He still sits on your foot and throws himself back so you will scratch his belly and the insides of his thighs. He was doing all his normal Harley tricks. After conversation with the team this morning and hearing how extensive the damages are and what 1:1 care he would need, we decided not to put him through anymore suffering. He would maybe need a permanent trach and very likely a GT that could or could not be permanent depending on the damage they find when they open him up. For those who know me, they know I'd do anything for him no matter the cost and trachs and GTs are my speciality but I just can't take care of him and a newborn at the same time. He was put to sleep on Monday night in Jay's arms with the support of Jay's mom and my Dad. Jay had to be my representative as I just couldn't bring myself to be there. He was my first dog after 24 years of putting a dog on my Christmas list and he has been the best little guy for the past 5.5 years, even though a lot of the time I'd tell you otherwise. I know he was well taken care of, better than most dogs and even some human beings =). I know he knows it too. The house is very quiet without him even with a new baby and Jake still. Harley surely must have been the one who brought the excitement and or yelling, hehe =). He'll always be my "first born" even if he was only a pup.

It just stinks in this time of joy with our daughter and the great news about her health that we have to suffer through something like this. We just can't seem to get a break but I know no matter what, she is most important and that is what I'm trying to focus on.
On another note, Jayson was completely awesome during all of my hospital admission and I couldn't have done it without him. He was my own personal nurse and I'm thankful for that. He was also extremely helpful with Harley and visited him many times for me when I just couldn't bring myself do it. He is also doing a lovely job as a first time dad with feedings, diaper changes, burping and all that jazz. He is already too protective of her and doesn't want one single boy around, hehe.
We had our first pediatrician visit on Monday and her weight dropped a little and her bili went up a little too so we had another appt. on Wed. Her weight was stable but no gain and her bili decreased slightly. Since she didn't increase weight, we have another appt. tomorrow (Friday) and I'm praying she at least gained something. I've trying breast feeding and to be completely honest, it's the pitts but I'm giving it a honest effort before I quit. I know this is the best for her and it's has some pretty good advantages for me too. The doc wants me to offer her breast feeding every 2 hours and it's been tough to stick to an every 2 hour schedule. It takes almost 1 hour to get her awake, alert, latched, burped, switched to the other side, and do it all over again. We really have 1 hour in between feedings. I haven't stuck to an every 2 hour schedule as supposed to but I just can't. Overnight I alternate with Jay too because it's too much for me to be up every hour. We supplement with formula and she takes both nicely.
Hope everyone had a great new years! Even though we have been through a lot, we did have a very good one too as it was the first night we were all together as a family. My goal is to update as frequently as I can but everyone who is parent know how that goes. I finally found some time to get to this and it's been a week and 1 day later. I'll also try to post more pictures soon. The two I posted was from Sunday afternoon but I have taken a bunch on my phone. I just need to send them to my email.
Congratulations!! I've been wondering how everything went!
ReplyDeleteShe's so beautiful. I think she looks like you a lot! I am so overjoyed to hear that you were able to birth her vaginally and on top of that, her shrunken ventricles! It's a miracle and such an answer to prayer! That is so exciting. I do realize, that while that feels amazing, it doesn't take away all your fears and worries. I'll be continuing to prayer for little Jaydn, which is a pretty name by the way.
I am so sorry to hear of your sorrow too. I know what it's like to lose a family dog and it's not easy. The house just doesn't feel the same.
Hi Casey,
ReplyDeleteCongratulations on the birth of precious Jaydn! I am so happy for you and your family. What a little miracle for 2010!
I am so sorry to hear about Harley. We had to put my cat to sleep the same weekend we got Parker's diagnosis. I got the cat for my 16th birthday and he was 17 when we had to let him go. It is totally gut wrenching but the best for the animal.
Blessings to you and your family!
Love,
Amy and Parker Hendrix (Turtlemom)
Shes such a cute little Mamma!! Sorry Jay, but you cant keep Little Man away! He and I are a package deal, and if you check out my facebook, hes already begun to make his move!!! hahaha.....
ReplyDeleteSo so happy for you guys!!!
Love ya
Jen