Monday, March 7, 2011

14 months old

Sorry I am slacking in the updating from Jadyn's neurosurg appointment. I passed along the good news to some friends/family and that was the end of it. Yes, good news, thank goodness. Jadyn's fluid remains stable...still there though. No changes in head circum. so that's goood. She is developing as she should. So with all that said, we'll go back in August (2nd Tuesday) to get a head measurement and continue to keep an eye out on any signs of increased pressure. We were pretty happy with that outcome.
She had her 1 year well baby/child appointment last Monday and she checked in at 28 pounds, 11 ounces and 32.5 inches long (both are over 97 percentile, as she has been for many months). She is just a large child. Our pedi thinks she is doing great so we'll go back in two months for our 15 month appointment. Our appointments were a little behind so our 15 will actually be 16 months. She got three shots on Monday so she was not happy about that.
We went to Vegas on Wednesday night for Jay's 30th birthday present. Yes, I know.. he is a lucky guy. Of course, Jadyn got sick on Thursday. She has been diagnosed with bilateral pink eye and now strep throat. She just started on her antibiotics for strep today and eye drops were started on Friday. Guess the grandparents weren't anticipating that type of babysitting job :-)
It made for a worrisome trip but I still managed to get some fun in. The daytime weather was such a nice change to Baltimore. I didn't even gamble 1 penny... isn't that crazy? I did manage to find 22 cents on the ground throughout the 4 day trip so I feel like I was in the green, LOL!!!
I can't even believe it's March already. It's really, really crazy.
We booked a vacation to Georgia in May to visit my aunt and her family. We are looking forward to it but not the plane ride with Jadyn. It should be rather interesting trying to get her to sit still for 2 hours while on an airplane. She isn't into cartoons really so I don't even know what to do. I guess feed her cheerios for 2 hours and hope that works?!?!
That's about it since I last posted about Jadyn's MRI. No news is good news to me but doesn't make for anything interesting, lol.
Happy St. Patty's Day, soon.


  1. Thank you so much for all of this information!! Last Friday I was at Hopkins getting an ultrasound and your friend Jen was my nurse. I am 35 weeks pregnant and my daughter has fetal hydrocephalus. It was detected at the 18 week sonogram. I was telling her I was getting nervous as I got closer to delivery and I was of course reading all negative info on the internet so she shared with me your blog. WOW. So I have now traveled your journey. Thankfully, my neighbor is the head of fetal radiology at Hopkins so when we were so worried around the 18-20 week mark he was instrumental in calming some of our fears. I had the blood test for bacteria, the cvs, amnio, microarray of genes, kidney ultrasound for baby, echocardiogram for baby and 3 MRI’s. Now we are gong with bi-weekly ultrasounds. They have found no other issues besides the aqueductal stenosis. At 18 weeks her ventricles measured at 1.5, at 30 weeks 2.1, and since February they have been at 2.5. The hardest part for me is the variability or lack of certainty for the outcome and her development. So yes I am nervous. To make things even stranger we have same neurosurgeon- Dr. Ahn. I have transferred al of my care to Hopkins per his request. Upon birth she will have a u/s of her brain to determine if immediate surgery is needed. I see yours is being monitored and I wonder if we will end up doing the same. Part of me worries about the brain surgery but the other part worries leaving the fluid and constantly going for checkups being nervous each time for results to see if the fluid has changed….

    I think Dr, Ahn saw how worried we were on 2/1 when we met with him as he said he just had a consult with a family with a year old daughter with relatively the same fluid levels that has not needed surgery and is meeting her milestones. Were you there on 2/1? After reading your story I have a gut feeling he was referring to you. Well I cant thank you enough for taking the time to share your story and offering me some hope!!!

    I will keep reading your story and wish you the best of luck in your journey as well.

    Lisa and Baby Catherine

  2. Hi Lisa
    I don't know if you'll ever come back to check this but my email address is if you'd like to email me about anything, questions, etc...
    And yes, we had Jadyn's MRI follow up appt with Ahn on 2/1 so he was talking about her :-)